Author: Pat Isenberg, Amputee Coalition Outreach Education Coordinator
Tips to help kids cope.
• Be prepared to assist the child with an answer that is appropriate for his or her age and developmental level.
• Pain is scary to children. Talk about different types of pain in terms the child can understand. (Remember the time you burned your finger? Or, the time you fell off your bike?) Remind your child that eventually pain gets better.
• Avoid giving children too much information, such as details about a complicated disease process or the amputation surgery.
• Can this happen to me? Alleviate fears by giving information that kids can understand. Remember that your explanations need to be planned to avoid creating additional fears or anxiety.
• Is this my fault? Younger children are egocentric; when things happen, they feel responsible. Make certain children know that they did not do anything to make this happen.
• Limb loss is not a punishment. However, if it’s the result of an accident, you may want to talk about safety issues at an appropriate time.
• Children will not “catch” this. Hugging and touching are still safe and very important parts of healing for the entire family.
• The parent is still a mommy or daddy, or grandparent, regardless of the limb difference. Talk about what is important – daddy can still read a bedtime story; mommy will still brush your hair.
• You may want to discuss things that may be different. Mom may have to learn a new way to bake chocolate chip cookies; dad may not be able to walk the dog for a few weeks (or months).
• Call upon the child’s natural desire to help. You can be mommy’s right hand until she learns to use the new one.
• Explain the new words: prosthesis, limb, residual limb, prosthetist. Make a game out of spelling or pronunciation of these words.
• Avoid adverse reactions. Explain differences in advance to prepare the child. Show pictures of other people with limb loss to desensitize the child.
• Focus on the similarities, but prepare for the differences. Have your child talk or write about his or her feelings, or express themselves through a drawing.
• Children are curious. Remove the mystery from the prosthesis by asking your prosthetist to explain the components used.
• If possible, have your child talk with other children whose parents have lost a limb.